Hello Friends and Family,
It is with heavy heart and great optimism that I am creating this Fund Raiser. As many of you know my daughter Lauren Rohan, has been battling several diseases since early childhood, including Juvenile Rheumatoid Arthritis, Crohn’s Disease and Gastroparesis.
She has been receiving medical care since the first diagnosis, but those medications and treatments come with multiple side effects and unintended consequences. Many of you will remember her Quinceanera, a beautiful and enjoyable event just days after Lauren was discharged from the hospital where she had been admitted for rapid weight loss and an inflamed and swollen intestinal track, with slight perforations. Through the miracle of Prednisone she was refitted for her dress and danced the night away.
Fast forward to today, now, after years of treatments and medications, the side effects have caused deterioration of her teeth and jaw. Lauren needs a complete jaw replacement and arch reconstruction. This includes the extraction of ALL of her teeth, to be replaced with dental implants.
This will be a very painful and long process. While Lauren is mentally prepared and understands the challenges she is going to face for the rest of her life, Blue Cross and Blue Shield, apparently, does not consider “teeth” and the “ability to eat,” “medical necessities” and refuses to cover any associated costs. Without insurance coverage, our estimated out of pocket expenses right now are well in excess of $190,000. Last year we spent just over $18,000 trying to save her teeth with multiple root canals, crowns and individual implants. That process has now come to an end, with multiple oral surgeons having informed us that we really only have one way forward, the way outlined above. Due to current infections in her teeth and gums, we have to follow through with their advice, while simultaneously, continuing to fight for insurance coverage. We are hoping to raise as much as possible toward Lauren’s healthcare needs, to give her the best opportunities available. She will turn 19 years old on April 7th, shortly after which she will complete her second year of college at Coastal Carolina. Positive thoughts and prayers, would likewise be greatly appreciated! MANY THANKS & MUCH LOVE!!!
I know our family has many technically and medically inclined members, so I have listed the medical coding of the necessary procedures.
We set up a Go Fund Me with the link below. Prayers and we'll wishes are greatly appreciated also.
https://www.gofundme.com/laurenrohan
Jaw Replacement
21243 - Arthroplasty, Total Joint Replacement (with Prosthetic)
21070 – Coronoidectomy
11981- Pain Pump Insertion
21497 - Interwire (or Placement of Arch Bar)
15769 - Graft - Soft Tissue
11981 - Pain Pump Insertion
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